-
Helping Caregivers Understand the Challenges of End-of-Life Decision Making for Those with Mental Retardation
Birth is a beginning and death a destination. Those of us who are considered to have capacity to make decisions for ourselves are nevertheless often unprepared as we face the end-of-life. We live in a death denying culture, which frequently prevents many of us from considering our options when we...
-
Giving Care to the Caregiver: Visiting Nurse Services in Westchester
Often, the homecare nurse will encounter that once-in-a lifetime individual who has decided to take on the huge task of being the primary caregiver for an ill family member. Their motivation may vary from person to person. It may be financial, concern for the quality of care, or just wanting to be...
-
Me First? A Personal Account of Self Care
When flight attendants give their safety talk at the beginning of each flight- where everyone listens to their iPod or begins to read a magazine- they state: “If there is a loss of cabin pressure, oxygen masks will fall from above. If you are traveling with a child or someone who needs your...
-
Peer-Led Support Helps Parents and Caregivers Cope with Mental Illness
When her teenage daughter was diagnosed with bipolar disorder, Deniece Chi did not know where to turn for help. A native of Belize residing in New York City, she had no experience with or understanding of mental illness. Her relatives dismissed the diagnosis and suggested that a lack of discipline...
-
Parenting the Second Time Around
Imagine you are at work and the telephone rings. It is the Department of Social Services. You hear the worker on the other end of the telephone say, “Please come to the courthouse immediately. Your grandchild is being removed from the care of her parent and may be in jeopardy of being placed in...
-
The Americans with Disabilities Act Amendments Act
The Americans with Disabilities Act (ADA) was signed into law by the first President Bush in 1990. The bill, championed by Senator Bob Dole, who himself suffers from a physical disability, was enacted with the intention of eliminating discrimination against the disabled, whether it be a physical or...
-
Staff Wellness and Self-Care: One Agency’s Model
A rather unsettling fact about American society is that within it there exists a high rate of violence and abuse. According to Kessler et al (1995), 60.7% of men and 51.2% of women will experience at least one traumatic event in their lifetime. Given this fact, Kessler et al also state that of this...
-
The Challenge of Caregiving: A Personal Story
Parents, spouses and other caregivers of individuals with illnesses and disabilities do not have special gifts. We are very average people who tap into our superhuman strengths that everyone has, but don’t always need to draw on. Twenty-five years ago this Fall my life changed forever. My son,...
-
The Economics of Recovery: Threading the Needle
The Government Guy was summing up his four hour PowerPoint presentation on how easy it was for people with disabilities to get a job; “You just need to take advantage of the many work incentives like Ticket-to-Work, PASS Plan, Medicaid Buy-In, IRWEs, Subsidies, Tax Credits, etc., don’t worry...
-
Addressing the Needs of Caregivers
All too often, the severely mentally ill do not have family or friends involved in their care to act as a vital support system when they become symptomatic. For those people who are lucky enough to have supportive family and friends, those support people are often, and validly so, frustrated with...
